Nerve Pain

Hi, I have diabetes, Type two. Is anyone on  now? I have Neuropathy in both of my feet. I take Neurotin and Darvocet. Does anyone have this problem? 

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Hi:  I just signed onto this site.  I have idiopathic neuropathy and am NOT diabetic.  I've had it for over 15 years.  It was diagnosed 5 years ago as Chronic Inflamatory Demilinating Poly Neuropathy and I was treated with i.v.IG and steroids (i.v.) along with ultram and morphine patch for pain.  The pain medication did not help.  I have terrible pain in my feet and nerves are dead almost to my knees.  Of course, my hands are in bad shape also.  My podiatrist gave me a prescription for very high doses of folic acid and Vitamin B complex.  It is expensive $67 for a month.  At first I thought he was going to sell them to me himself, but no, it was a prescription.  Of course, my insurance didn't cover it.  I recently moved to the Oklahoma City area and was finding new doctors in the area.  I then saw the neurologist and he suggested Cymbalta.  My family doctor, an internest, said to wait until the 3 months use for the supplement before trying Cymbalta, so I could make an educated decision.  The podiatrist said it needed to be taken for 3 months before you get the results.  He said it was a new treatment he heard about.  So, I'm trying the supplement.  The name of the supplement is Metanx.  I asked the pharmicist if I could buy supplements cheaper.  She looked them over and said I couldn't get that concentration without maybe over doing it with some other ingredients that might not be good.  AND, I would have to spend more in the long run to get that concentration.  I'm one month into this new treatment.  I can't say I have less pain.  I had a blood test last week and received the results.  Interesting -- Vitamin B12:  high range 1190 reference range 200-1100

Folate:  In Range >24.0  (I can't figure that one out)

A1c is 5.4  So I'm non diabetic.  When I filled out the questionaire for this site I wanted information on neuropathy and they won't let me on unless I say I'm a diabetic.  Very frustrating.  Ruth

Ruth, I'm rightthere withya. I was dx'd in 2005with CIDP but mine was caused from chronic B12 deficiancy tht was actaully cased byundiagnosed Celiac Sprue. It too is an autoimmune disease  that causes glutens (wheat, barley, rye & oats) toeatthe lining in my  intestines. this causes malnurishment and deficiencies in  manyvital proteins and vitamins. I too have extreme neurpoathy and pain daily. I'm currently on 13 meds PLUS I take IVIG treatments 3 days in a row, every3 weeks.It is veryt axing on my body and myschedule. I've had to go on disability due to this.  I'm told my CIDP is progressive and so I'll likely be on this roller coaster for the rest of my life.

I've tried Lyrica, cymbalta and neurotin for my pain. Theneurotin seems to do the best for me but i'm currently taking 1200mg 4 times a day and I only weigh 145. I was also taking 60mg of cymbalta twice a day and they started me on tylenol #3 to assist. I've sincehad to drop my cymbalta back to the recommended 60mg once a day so i could be placed on an anit depressant, as the debilitating effects of the CIDP has worn me out  mentallyas well as physically. I dont' reallyhave any good answers for you, I'm afraid, since they are just now starting me on somenarcotics for the pain. I have read that narcotics can actually intensify neuropathy pain, so watch out for that. May I recommend, since we don'thave diabetes to get info on this site, that you goto GBS.com and they have a great forum to vent, get answers and know that you are NOT alone in this. I say this site since your CIDP is the chronic version of GBS. And I agree that it isn't fair that we cannot get info on neuropathy unless we lie and say we are diabetic... takecare Karen

someone please tell me why? why am i falling apart? poly neuropathy is very painful!