Epilepsy & Seizures Support Group

Living with epilepsy can be a challenge, but you don't have to go it alone. Members of our support group can offer valuable information and support to help you cope with your condition.


Newest Group Members

I just really need help with the medication. The hard thing is my daugther 14 and out off six girl and 3 boy she 's the only one to have Epilepsy and Autism
get them bad, fractured my ankle and my arm now pops out of place, i got a scar on my left eye, my knees now hurt, SUCKS i have epilepsy.ihaved this condtion sense i was 18 yrs old my seizures are under control sometimes
I have had seizures since I was 6 but was not officially diagnosed until I was 27. kash

Recent Discussions

An old epileptic
I have had it for 49.5 yrs now. When I was 18 mos old I turned coal black and had a temp of 108+. The drs did not understand epilepsy back then like they do today. The 2 main drugs back then were Valuim and Phenabarbatrol and the off shoots.  I just wish    Read more...
Posted by cjtielking on Sat Aug 1

Re: DAMAGES SEIZURES DOES
Hello, I am new here. I am now 44. I have grand mal seizures to aura seizures everyday. I weighed 10 pds. when I was born. Therefore they had to pull me out with forceps. They crushed my skull so much that I had 2 black eyes scratches up and down the side   Read more...
Posted by mooky133 on Thu Jul 23

?? what is it ??
Hi all ... I'm Lori and I'm new ... I started having grand mals out of the blue last jan and it took six months before they could get them under control.  I'm currently taking lamictal and neurontin.  These seem to be working.  However, lately I've been h   Read more...
Posted by wisegirl213 on Tue Apr 28

SEIZURES
WHEN A DOCTOR TELLS YOU THAT YOU DON'T HAVE ANY PROBLEMS.  I SUGGEST THAT FIND ANOTHER DOCTOR THAT CARES.   Read more...
Posted by ROGERBUN on Sun Jan 25

Zonisamide
Is anyone ellse taking Zonegran - or Zonisamide, the generic?  And are  you having any side effects from it?  So far I've had good luck with it, but I wonder what the long term risks are?  I take 400 mg every night, with 10 mg clonisamide for depresson, a   Read more...
Posted by suelyn08 on Sat Nov 15

epilspsy
I got ran in A long time ago and the pill they gave me seizuires. My eplispsy has gotten better but they were horrible for a long time I dreaded the nights and The state of oregon is particially responable for this non-sence Be sure if u go some where t   Read more...
Posted by cinthia on Sat Oct 18

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Meet the Group Leader

Natalie is Quality Health's Community Manager. An avid runner, she is extremely passionate about health, diet, and fitness and is committed to helping other members of the community find the resources and support for all of their healthcare needs.
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