Epilepsy & Seizures Support Group
Living with epilepsy can be a challenge, but you don't have to go it alone. Members of our support group can offer valuable information and support to help you cope with your condition.
Newest Group Members
Recent Discussions
An old epileptic
I have had it for 49.5 yrs now. When I was 18 mos old I turned coal black and had a temp of 108+. The drs did not understand epilepsy back then like they do today. The 2 main drugs back then were Valuim and Phenabarbatrol and the off shoots. I just wish Read more...
I have had it for 49.5 yrs now. When I was 18 mos old I turned coal black and had a temp of 108+. The drs did not understand epilepsy back then like they do today. The 2 main drugs back then were Valuim and Phenabarbatrol and the off shoots. I just wish Read more...
Posted by
cjtielking
on
Sat Aug 1
Re: DAMAGES SEIZURES DOES
Hello, I am new here. I am now 44. I have grand mal seizures to aura seizures everyday. I weighed 10 pds. when I was born. Therefore they had to pull me out with forceps. They crushed my skull so much that I had 2 black eyes scratches up and down the side Read more...
Hello, I am new here. I am now 44. I have grand mal seizures to aura seizures everyday. I weighed 10 pds. when I was born. Therefore they had to pull me out with forceps. They crushed my skull so much that I had 2 black eyes scratches up and down the side Read more...
Posted by
mooky133
on
Thu Jul 23
?? what is it ??
Hi all ... I'm Lori and I'm new ... I started having grand mals out of the blue last jan and it took six months before they could get them under control. I'm currently taking lamictal and neurontin. These seem to be working. However, lately I've been h Read more...
Hi all ... I'm Lori and I'm new ... I started having grand mals out of the blue last jan and it took six months before they could get them under control. I'm currently taking lamictal and neurontin. These seem to be working. However, lately I've been h Read more...
Posted by
wisegirl213
on
Tue Apr 28
SEIZURES
WHEN A DOCTOR TELLS YOU THAT YOU DON'T HAVE ANY PROBLEMS. I SUGGEST THAT FIND ANOTHER DOCTOR THAT CARES. Read more...
WHEN A DOCTOR TELLS YOU THAT YOU DON'T HAVE ANY PROBLEMS. I SUGGEST THAT FIND ANOTHER DOCTOR THAT CARES. Read more...
Posted by
ROGERBUN
on
Sun Jan 25
Zonisamide
Is anyone ellse taking Zonegran - or Zonisamide, the generic? And are you having any side effects from it? So far I've had good luck with it, but I wonder what the long term risks are? I take 400 mg every night, with 10 mg clonisamide for depresson, a Read more...
Is anyone ellse taking Zonegran - or Zonisamide, the generic? And are you having any side effects from it? So far I've had good luck with it, but I wonder what the long term risks are? I take 400 mg every night, with 10 mg clonisamide for depresson, a Read more...
Posted by
suelyn08
on
Sat Nov 15
epilspsy
I got ran in A long time ago and the pill they gave me seizuires. My eplispsy has gotten better but they were horrible for a long time I dreaded the nights and The state of oregon is particially responable for this non-sence Be sure if u go some where t Read more...
See more...
I got ran in A long time ago and the pill they gave me seizuires. My eplispsy has gotten better but they were horrible for a long time I dreaded the nights and The state of oregon is particially responable for this non-sence Be sure if u go some where t Read more...
Posted by
cinthia
on
Sat Oct 18
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