![]()
| Sort by: Newest | Oldest |
|
Neurotropin in Fibromyalgia
|
|
Wed Sep 10 02:05:00 EDT 2008
|
Has anyone heard anything about this form of treatment? Is it effective?
Re: Neurotropin in Fibromyalgia
|
|
Mon Jun 23 13:51:00 EDT 2008
|
Hello Helen, glad to meet a fellow sufferer. I'm not sure exactly what type of treatment you're referring to but there have been recent studies linking Brain-derived Neurotrophic Factor Elevated in Fibromyalgia Patients. This article might be of interest to you. Best of luck.
Re: Neurotropin in Fibromyalgia
|
|
Tue Jul 8 16:31:00 EDT 2008
|
Hello. If your "Neurotropin" is similar to Neuronton (which is an anti-seizure med used for things like depression and maybe mild mood disorder), then I used it 1x daily for a little while. I was supposed to get up to 3x daily, but just couldn't work 3 pills in a day w/ my current body/daily schedule. When I tried 2 pills about 12 hrs apart, I experienced increased drowsiness. Plus, all this stuff makes me gain weight. That is definitely an issue for me! I'm 45, petite at 5'1" and had just lost about 10 lbs. I'm now back up to more than 145!!!! Why can't these drugs help you and make you skinny for a change?? Best of luck in your treatment.
Re: Neurotropin in Fibromyalgia
|
|
Sun Sep 7 05:12:00 EDT 2008
|
I've tried it. It is also known as gabapentin. I believe most insurances require you try neurotin before you can get Lyrica. I've tried everything, including Lyrica. I am getting ready to start going to a Fibro clinic that just opened recently in Lancaster, PA. Because of my severe deppresion when I tried Lyrica I went of my Zoloft. Going off the Zoloft was a dissaster for me. So hopefully when I can finaly be with people that understand and profesionals that are dedicated to this horribly painful dibilatating disease I can retry Lyrica. I will follow up and give my experience with both. My current regement after 3 years of trying different antideppressents, M.R.'s, and pain meds. I take Zoloft, flexeril, valium, and at night Chlorzoxazon. Take note. I do not combine the valium with either of the M.R.'s. I find it just helps to swithch on and off from flexeril and valium. I also have resorted to oxycontin. As I have seen with others it seems Fibro coexits with other injuries and or traumas. I knew for 10 years I had terrible pain in tender spots, with unexplained exhaustion and depression. After I had a spinal injury do to domestic violence my Fibro kicked in ten fold. I also have had days to weeks that I could not get out of bed. Now it takes about 2 hours to be able to walk straight when I get up in the morning. I have to do a lot of stretching and by that ime the meds kick in and I start my day. I know it is very hard but once I do that as the day progreses. My pain lessens. Oh I forgot to mention, getting into a pool and moving around is very helpful as well as massage, positive imaging, and just keep putting one foot in front of the other. I hope and pray they can figure out something that would just get my pain level down to a 3. My worst trigger for severe flair ups is stress. Which there is a lot of because know one understands and personaly I have no support from my family. They think I can just snap out of it. I also no longer have friends or hobbies. My sons father left me when my son was 8 months old because he thouight I was lazy and pathetic. My only saviour is my Dr. She has been working with me for three years. Oh, I also occasionaly get trigger point injections and have psychotherapy once a week. One last thing if you couil manage to get a full nights sleep. That realy helps. I think I've had a couple. Good luck and Bless you all!
Re: Neurotropin in Fibromyalgia
|
|
Wed Sep 10 02:05:00 EDT 2008
|
Well I am 30yrs old now and was diognosed with fibro when I was 15yrs old. One of the things that helps me in stressful times is to take a step back soak in a hot tub hotter than most people can even stand to touch let alone lay in lol, and listen to some soft spa type music by candle light. Of course I have to pop a few muscle relaxers before I soak but usually the temp of the water helps release the dagger that seems to live between my shoulder blades. I am by no means lazy nor have I ever really been accused of it. A combat vet of the Army I learned how to keep my body flexable and use meditation to control my mood swings as best I can with a regimine of medications and regular visits and monitoring with my reumatoidologist. I know this disease is crippling and I know because of it I am limited in my day to day life but, I look at it this way I am not going to give society the satisfaction of rolling over and playing dead , no matter how much they would like to just tuck all the fibro patients into a dark corner and forget about us. Why should I? Yeah I hurt, yeah I am way too young to have to feel like this day in and day out but you know what I AM NOT DEAD YET and no matter what people say about our condition I know what I go thru and you go thru everyday. Why should I care what people (who could never even phathum the cronic pain, exhaustion and torment from lack of understanding of our disease) think? The point is don't let this disease rule you it is something you suffer from but it is NOT who you are!!!! Find a good dr., join a yoga class to help with flexibility, and just take it one day at a time. Fibromyalgia is a desease, not a death sentance. Take it from someone who has suffered from it for 15 very long years.
You can live after the fibro diagnosis!!!
![]()


